The 22q Family Foundation
The 22Q Family Foundation
Viviane Woodard is Dedicated to Raising Awareness For 22 Q11.2 Deletion Syndrome.
My beautiful grandson Elliot was born with a genetic condition called 22q11.2 deletion syndrome (22q for short). There are many names that are associated with 22q: “DiGeorge”, “Velo-Cardio facial syndrome”, and others but the larger umbrella term is 22q.
It is the second most common rare syndrome next to Down Syndrome, and can occur in 1 in 2000 live births.
Sadly, many people have never even heard of it and our goal is for that to change!
To learn more about 22q, or make a donation, please visit their website.