The 22Q Family Foundation
Dedicated to Raising Awareness For 22 Q11.2 Deletion Syndrome While Connecting, Supporting, and Offering Accurate Information To Families Affected By The Disorder.
My beautiful grandson Elliot was born with a genetic condition called 22q11.2 deletion syndrome (22q for short). There are many names that are associated with 22q… Digeorge, Velo-Cardio facial syndrome, and others but the larger umbrella term is 22q.
It is the second most common rare syndrome next to Down Syndrome, and can occur in 1 in 2000 live births. Sadly, many people have never even heard of it and our goal is for that to change!
To learn more about 22q, or make a donation, please visit their website.