Giving Back

    Cranio Care Bears helps to build awareness of Craniosynostosis to families, navigate the diagnosis, and engage the medical community for early detection. We provide support and encouragement through loving care packages that are a source of relief and joy to families who have with an infant with Craniosynostosis. Our mission is to help…

CHD stands for congenital heart disease, a structural abnormality of the heart or its function that occurs at birth with chronic secondary complications that can last throughout life. Each year approximately 40,000 babies are born with CHD in the U.S., that’s 1 every 15 minutes. In fact, one in every 100 babies born in the…

The 22Q Family Foundation Dedicated to Raising Awareness For 22 Q11.2 Deletion Syndrome While Connecting, Supporting, and Offering Accurate Information To Families Affected By The Disorder. My beautiful grandson Elliot was born with a genetic condition called 22q11.2 deletion syndrome (22q for short). There are many names that are associated with 22q… Digeorge, Velo-Cardio facial…