Giving Back

    One of my sweet grandsons was born with a rare type of Craniosynostosis. Before his surgery to repair his skull, he and his family were blessed to be recipients of a care package from Cranio Care Bears. It was a bright spot in a dark time. As a result, Viviane Woodard wants to…

  My grandson was born with a genetic condition called 22q11.2 deletion syndrome (22q for short) and with the diagnosis, Elliot has had to undergo two open heart surgeries and will have more as he grows. Viviane Woodard has chosen to support  CHD in hopes to advance the diagnosis, treatment, and prevention of congenital heart…

The 22Q Family Foundation Viviane Woodard is Dedicated to Raising Awareness For 22 Q11.2 Deletion Syndrome. My beautiful grandson was born with a genetic condition called 22q11.2 deletion syndrome (22q for short). There are many names that are associated with 22q: “DiGeorge”, “Velo-Cardio facial syndrome”, and others but the larger umbrella term is 22q. It…